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NOTOI
Ravi Tiku
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Colin Farrell Honors His Son: Colin Farrell tears up discussing his son's Angelman syndrome and launches a foundation to support others with similar challenges.
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The Colin Farrell Foundation: The new foundation aims to transform lives through education, awareness, advocacy, and innovative programs for individuals with intellectual disabilities.
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James' Diagnosis: Farrell's 20-year-old son James was diagnosed with Angelman syndrome, a rare neurogenetic disorder, causing developmental delays and speech difficulties.
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Understanding Angelman Syndrome: Angelman syndrome causes delayed development, speech and balance issues, mental disabilities, and sometimes seizures. There is currently no cure.
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Early Signs and Misdiagnosis: James was very silent as an infant and initially misdiagnosed with cerebral palsy before doctors identified Angelman syndrome.
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James' First Steps: Farrell recalls the emotional moment when James took his first steps just before his 4th birthday, defying expectations that he may never walk.
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A Happy Life: Despite being nonverbal, James leads a happy life. Farrell expresses pride in his son's achievements and calls him "extraordinary."
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Foundation's Mission: The foundation aims to create group homes and communities for people with intellectual disabilities and advocate for policy changes, like increased Medicaid funding.
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Looking to the Future: Farrell's motivation for the foundation includes concerns about his son's future and ensuring he has the support needed as he grows older.
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Humbled and Hopeful: Farrell feels excited and humbled by the potential impact of the foundation in helping those neglected by larger systems of governance.