Colin Farrell has launched a foundation for people living with intellectual disabilities.(
Reuters: Mario Anzuoni)
Irish actor Colin Farrell has launched a foundation dedicated to supporting individuals with intellectual disabilities and their families, inspired by his son James, who has Angelman syndrome.
Farrell, renowned for his roles in films like Banshees of Inisherin and In Bruges, announced the foundation in an interview with People magazine. The magazine’s latest issue features Farrell on the cover with the quote, “I want the world to be kind to my son.”
“This is the first time I’ve spoken about it, and obviously the only reason I’m speaking is I can’t ask James if he wants to do this,” Farrell told People. “I speak to James as if he’s 20 and has perfect fluency with the English language and age-appropriate cognitive ability. But I can’t discern a particular answer from him as to whether he’s comfortable with all this or not, so I have to make a call based on knowing James’s spirit and what kind of young man he is and the goodness that he has in his heart.”
Farrell emphasized the urgency of launching the foundation as James approaches adulthood. “Once your child turns 21, they’re kind of on their own,” he said, expressing his concerns about James’s future.
The foundation’s website outlines its focus on housing, day programs, workforce support, camps, and advocacy for policy changes and funding. “The goal of our programs and initiatives is to make significant strides in improving the lives of those living with intellectual disability,” the website states. “Our work brings hope and tangible support to families in need.”
Understanding Angelman Syndrome
Angelman syndrome is a rare genetic condition affecting nerve function in the brain, leading to a range of physical and intellectual challenges. It affects approximately 1 in 15,000 live births.
Symptoms of Angelman Syndrome:
- Frequent, unexplained laughter and smiling
- Limited or absent speech
- Severe intellectual disability and delayed development
- Balance and movement issues
- Restlessness and excitability
- Reduced need for sleep, especially in children
Additional symptoms may include seizures, a small head with a flat back, and certain facial features like widely spaced teeth.
Is There a Cure?
Currently, there is no cure for Angelman syndrome, but individuals typically have a near-normal life expectancy. Ongoing care from a team of health professionals is essential to ensure the best possible quality of life. Researchers are actively working on gene therapy approaches and treatments to alleviate symptoms and improve the lives of those affected.
Treatment Approaches:
- Speech therapy
- Occupational therapy
- Physical therapy to improve posture, balance, and movement
- Use of physical supports such as back or leg braces
- Medication to control seizures
Angelman syndrome is caused by a genetic defect involving the UBE3A gene on chromosome 15. In most cases, it occurs by chance around the time of conception.
Colin Farrell’s Family
Farrell has two children: James, born in 2003, and Henry, born in 2009. James’s mother is model Kim Bordenave, and Henry’s mother is actor Alicja Bachleda-Curus. Farrell referred to his sons as “the loves of my life” during his 2023 Golden Globes acceptance speech.
Farrell brought his youngest son, Henry, to the 2023 Oscars, where he was nominated for Best Actor for his role in Banshees of Inisherin.
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